Prioritizing treatments for rare diagnoses: key perspectives from the panel discussion
At a time when health policy and medical care are constantly evolving, the question of prioritizing...
About the Coalition
The Coalition is working to ensure a predictable framework for medical treatment, when such treatment is available. We believe this contributes to improving the quality of life and health of patients with rare diseases.
The political work of the Coalition
The Coalition works politically to highlight how framework and measures can improve care for patients with rare diseases. You can read more about our policy issues and contributions here.
What are rare diseases?
The national strategy for rare diagnoses defines as rare diseases diagnoses that occur in fewer than approximately 2700 individuals - or 1 per 2000 inhabitants in Norway.
Relevant cases in the media
The Coalition is working to raise the visibility of rare diseases. Click below for an overview of relevant media coverage.
Events
Here you can find an overview of events related to rare diseases.
Events
Policy
Input to expert groups - the prioritization report
The Coalition for Rare Diseases consists of 5 biotech companies working to improve the quality of life...
Events
Input on proposals on the need for a national funding solution for rare diagnoses
Our input to the proposal The Coalition for Rare Diseases thanks the Norwegian Parliament for choosing to...
Policy
Coalition's oral consultation input
The Coalition for Rare Diseases thanks the Progress Party for choosing to focus on rare diseases.
Policy
Input on proposals on the need for a national funding solution for rare diagnoses
Our input to the proposal The Coalition for Rare Diseases thanks the Norwegian Parliament for choosing to...