FrP: must make it easier for rare people to get treatment
FrP, represented by Bård Hoksrud, submitted a proposal on 08.03. 2023 proposal to make it easier for people with rare diseases to...
The Coalition is working to ensure a predictable framework for medical treatment, when such treatment is available. We believe this contributes to improving the quality of life and health of patients with rare diseases.
The Coalition works politically to highlight how framework and measures can improve care for patients with rare diseases. You can read more about our policy issues and contributions here.
The national strategy for rare diagnoses defines as rare diseases diagnoses that occur in fewer than approximately 2700 individuals - or 1 per 2000 inhabitants in Norway.
The Coalition is working to raise the visibility of rare diseases. Click below for an overview of relevant media coverage.
Here you can find an overview of events related to rare diseases.
FrP, represented by Bård Hoksrud, submitted a proposal on 08.03. 2023 proposal to make it easier for people with rare diseases to...
Rare Disease Day is held on 29 February every year worldwide and is added to 28 February when it
Thank you for the opportunity to participate in the hearing. I, Kristin Mesteig and my colleague Bjørn-Kristian Svends...
The Coalition for Rare Diseases (the Coalition) refers to the Parliament's website and the invitation to...
The Coalition for Rare Diseases (the Coalition) thanks you for the opportunity to provide input to the...