Rare Disease Day is held on 29 February every year worldwide and is added to 28 February when it is not a leap year. In Norway, FFO has an event to mark the day and bring together those affected either as patients or... Read more "Sjeldendagen 2023
New knowledge should lead to new priorities. At the Coalition's meeting during Arendalsuka 2022, Menon Economics presented its findings in the report for the first time to key decision-makers, experts and patient representatives in the field of rare diseases. The Coalition invited to a panel discussion between key... Read more "Rare diagnoses require rare solutions
During Arendalsuka 2021, the Coalition invited to a conversation about the framework for the field of rare diseases, how this has evolved, and how it is hoped that the strategy can help provide a direction for the field that safeguards the framework that is already in place... Read more "Arendalsuka - The patient's health service - also for the few?
