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UCB joins the Coalition

    The Coalition for Rare Diseases is strengthening its work with UCB as a new partner in its efforts to improve the quality of life and health of patients with rare diseases. The Coalition for Rare Diseases thus goes from 4 to 5 biotech companies and joins... Read more "UCB joins the Coalition

    FrP: must make it easier for rare people to get treatment

      FrP, represented by Bård Hoksrud, submitted a proposal on 08.03. 2023 proposal to make it easier for people with rare diseases in Norway to access good and effective treatment.
      In brief, the proposal is based on:
      - A national funding scheme
      - Rarity as a separate criterion
      - Ensure rapid access to new and available medicines for patients with rare diagnoses