FrP, represented by Bård Hoksrud, submitted a proposal on 08.03. 2023 proposal to make it easier for people with rare diseases in Norway to access good and effective treatment.
In brief, the proposal is based on:
- A national funding scheme
- Rarity as a separate criterion
- Ensure rapid access to new and available medicines for patients with rare diagnoses
Thank you for the opportunity to participate in this hearing. I, Kristin Mesteig and my colleague Bjørn-Kristian Svendsrud represent the Coalition for Rare Diseases, which consists of several biotech companies. We work to improve the treatment and quality of life of people with rare diagnoses... Read more "The Coalition participated in the hearing on the State Budget 2023
The Coalition for Rare Diseases (the Coalition) refers to the Storting's website and the invitation to participate in the consultation on Prop 1S (2022-2023) for the budget year 2023 under the Ministry of Health and Care Services. In this consultation response, the Coalition requests that the Health and Care Committee: The basic allocations shall from... Read more "The Coalition 's input to the State Budget for 2023
The Coalition for Rare Diseases (the Coalition) thanks you for the opportunity to provide input to the Ministry's work on the National Health and Coordination Plan. We would like to draw the Ministry's attention to the following elements that we believe should be given special focus in the work... Read more "Input to the National Health and Coordination Plan
The Coalition thanks you for the opportunity to provide input to the Ministry's work on revising the strategy for personalised medicine. We would like to draw the Ministry's attention to the following four elements that we believe should be included in the upcoming work on... Read more "Input to the revision of the strategy for personalised medicine
Consultation response to Representative's proposal 233 S (2021-2022) to provide faster access to medicines for Norwegian patients The Coalition for Rare Diseases (the Coalition) works to improve the quality of life and health of patients with rare diseases. We also work for good and predictable framework conditions for... Read more "Faster access to medicines for Norwegian patients
Consultation input from the Coalition for Rare Diseases on Document 8:40 S (2021-2022). The Coalition for Rare Diseases (the Coalition) refers to the Storting's website and the invitation to participate in the consultation on Document 8:40 S (2021-2022) - Representative proposal that the Storting must have the evaluation... Read more "The Storting must have the evaluation of New Methods for consideration
Consultation input from the Coalition for Rare Diseases to Prop. 1S (2020-2021) - National Budget for 2022. The Coalition for Rare Diseases (the Coalition) refers to the Storting's website and the invitation to participate in the hearing on Prop 1S (2021-2022) for the budget year 2022 under the Ministry of Health and... Read more "Input to the State Budget 2022
Consultation input from the Coalition for Rare Diseases to Prop. 1S (2020-2021) - National Budget for 2021. The Coalition for Rare Diseases (the Coalition) works to improve the quality of life and health of patients with rare diseases. The Coalition also works for predictable framework conditions for medical treatment, when... Read more "Input to the State Budget 2021
Input to the consultation on Meld. St. 7 (2019-2020)Nasjonal helse- og sykehusplan 2020-2023 We refer to the Storting's invitation to participate in the consultation on Meld. St. 7 (2019-2020) National Health and Hospital Plan 2020-2023. We thank you for the opportunity to provide input.... Read more "Høring nasjonal helse- og sykehusplan
