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Policy

FrP: must make it easier for rare people to get treatment

    FrP, represented by Bård Hoksrud, submitted a proposal on 08.03. 2023 proposal to make it easier for people with rare diseases in Norway to access good and effective treatment.
    In brief, the proposal is based on:
    - A national funding scheme
    - Rarity as a separate criterion
    - Ensure rapid access to new and available medicines for patients with rare diagnoses

    Input to the national budget 2022

      Consultation input from the Coalition for Rare Diseases to Prop. 1S (2020-2021) - National Budget for 2022. The Coalition for Rare Diseases (the Coalition) refers to the Storting's website and the invitation to participate in the hearing on Prop 1S (2021-2022) for the budget year 2022 under the Ministry of Health and... Read more "Input to the State Budget 2022

      Input to the State Budget 2021

        Consultation input from the Coalition for Rare Diseases to Prop. 1S (2020-2021) - National Budget for 2021. The Coalition for Rare Diseases (the Coalition) works to improve the quality of life and health of patients with rare diseases. The Coalition also works for predictable framework conditions for medical treatment, when... Read more "Input to the State Budget 2021